So, you’ve been diagnosed and don’t know where to turn for education. Don’t forget about “Parkinson’s for Dummies” book. It is an easy read and it explains things in detail for you. I read it in two days and understood what I was getting ready to experience. Don’t forget everyone is different with symptoms, medications, and side effects. My son says “Mom, your side effects are more problematic than the symptoms from the disease”. I’m not sure if that is really accurate, but it sure feels like it is that way.
Education can be found from all Parkinson’s Foundations. Some will have booklets, pamphlets, CD’s, on-line training, and much more. You need to take advantage of as much education as you can from the Foundations. You can locate some of the Foundations on my post where the “Links” are located. Support groups are a great way to meet others in your shoes. You should search for a Group in your area. The more you know, the better you will feel about the disease.
The first thing I did was read the book. I wanted to be somewhat educated about PD before I started speaking it. It seemed to be a different world and I was not familiar with the language, people, or all the scheduling. It is a roller coaster ride, with lots of hills, valleys, and curves…..over and over again. I hold on tight so I don’t derail.
I am not trying to scare you. I’m just trying to prepare you. This is definitely one time that every patient is a like. It is a roller coaster ride for everyone. No one knows where the ride is going to take them or even if it will stop. The hills it climbs are the ones that give you hope that you are going to make it. The valleys are when you get depressed with your situation, whether it’s the meds are not working, you have to use a walker, you are having trouble speaking, and much more. The curves….well the curves…..no one likes….you feel like you are going to fall off the rails, and at the same time, it feels like there is no way off that roller coaster. “Be in the Know” and that roller coaster ride won’t be as scary.
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© Written by Mary Killian