It is estimated that over 500,000 Americans live with Parkinson’s disease, including me, Mary, living right here in Louisville

While being in Washington D.C. last week with over 250 participates, including me and my daughter, advocating for better policies, treatments, and a cure for Parkinson’s disease, I received a copy of the attached letter from President Obama.

It is touching to know that the President of the United States and his staff have taken the time out to acknowledge that April is Parkinson’s Awareness Month and to ask for the support of our community.  I plan to send President Obama a personal note of thanks for his support and recognition of this chronic progressive disease that has not only affected me, but also the lives of my sister and grandmother.

There is really no known exact figure of how many American’s have this diseases.  While in D.C., the Advancing Research for Neurological Disease Act H.R. 292 was passed to the Senate 849.    This critical legislation will create a national data collection system at the Centers for Disease Control and Prevention (CDC) focused on neurological diseases, including Parkinson’s disease. It is estimated that between 500,000 to 1.5 million Americans are living with Parkinson’s, but the truth is we do not have accurate information on how many people are living with the disease and what causes it. This lack of core knowledge inhibits Parkinson’s research, programs, and services.

I am permanently disabled due to this disease and am in hopes to receive your support in getting this legislation passed as soon as possible.  Please contact your Senator and let him know that you are in support of Senate 849.  Your support will be greatly appreciated in the Parkinson’s community.

For more information, please comment.

2 thoughts on “President Obama Letter

  1. Mary, Is there an email address I could use to send you a letter. PM messages don’t seem to work for us and I’d rather not post it in a public forum

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